(1) Reasons to be calm

Here are some quotes from recent posts on the Bladder Cancer Advocacy Network that I find encouraging as I look ahead to my RC (Radical Cystectomy). It will be performed by Dr. Amit Gupta at the University of Iowa Hospitals and Clinics. An RC is the process of having my bladder removed.  The doctor is planning on replacing it with a neo bladder…

cropped-hopper1.jpgFrom jennyssis: “No one in their right mind WANTS to have their bladder removed, but wanting to live takes precedence to what sounds like the most horrific surgery you could imagine. Our imaginations run wild on this, though, and the reality is not as bad as we imagine.”

From mikefro: “I had an RC with neo-bladder procedure in June of last year. I did not want to have my bladder removed, I was afraid of what life would be like afterwards. I am now 9 months post-surgery and am back to doing everything I did before surgery. We made two recent plane trips without any problems. “

From Cliffsider: “The single most important factor in life after RC is the confidence that you have chosen the very most effective plan of care; one that maximizes the likelihood of having a long cancer-free life!”

From seymourf: “My own experience is that I had RC and a neobladder installed 13 weeks ago. My life is pretty much back to normal. I am back to work and I am working out at the gym. My diet is normal. My neobladder gives me around 6 hours of sleep at night.”

From Thosmas0366: “I think there is almost nothing to fear about the surgery compared to the disease.”

And I think this one sums up how I feel:

From jennyssis: “The whole experience is pretty much a “grit your teeth” and go for it so that you can stay alive with your family and friends for a nice long time.”

That means you.  Thank you for your support.

8 thoughts on “(1) Reasons to be calm”

  1. My Dear Sweet Mike,
    Thank you for sharing. Long ago I made a promise to you. I will be with you, as calm as I can be, every step of the way as this journey begins. love, eileen

    1. Dear Mike,
      Thank you so much for sharing this adventure. All the good thoughts, prayers & love sent your way, will fill the bumps in the road as you go along. We are confident you will beat this. We will miss seeing you this summer, but we’ll make up for it next year, and be able to celebrate.
      Hugs, Your cousins Roberta & Ray

  2. Dear Mike(aka Uncle Mike/Pacino),
    We love you very much. As we journey home from California, know that we have our bags packed and ready to be there to support this journey you will take. We are there for you and Eileen – never hesitate to ask for anything! We love you!!
    Love,
    Tim, Ann, Lauren and Marley
    ⭐️⭐️⭐️?? ❤️

  3. Mike (& Eileen),

    We were shocked to hear this news. We know nothing about bladder cancer, but all too well about cancer invading loved ones’ peace of mind and security. Your blog was reassuring to read. Am glad you’re reaching out to hear about cases that are similar to yours with positive results. You’ll be in our best thoughts and prayers. Hang in there you two!!!!!!

  4. Mike, I haven’t stopped thinking of you both since I received the news. Just know how proud of you both I am at the way you’ve approached this challenge. Continue on course and I hope to see you soon when fully recovered ( and when I can drive myself and Basie out). Know that you both are in my thoughts and prayers constantly.
    Sue

  5. I’m shocked, concerned and hopeful.
    When we spoke last, BCG treatments were the course of action.
    I guess with this rotten disease, things can change quickly.
    Both you and Eileen are the most positive and centered people I know. The attitude you carry with you, will beat this and get you through.
    Bill and I are here if you need anything. Even if it’s just a hug.

  6. Dear Mike,

    We have not met in person. Yet. But because I adore your wife, I’m sending you some of my spare Angels. ?? Please use them frequently and go ahead and ask anything of them you want. Don’t be shy! They’re used to working hard!
    May your “ups” be many and your “downs” few…sending a warm hug for you and a middle finger to cancer.
    Nancy

  7. Praying for you, and feeling optimistic for you.

    Cancer sucks, treament’s not much better, but it is the means for getting healthy. Revel in that!!!

    Will read up on the neo bladder.

    Hugs to you and Eileen. You’re one heck of a team.

Leave a Reply

Your email address will not be published. Required fields are marked *