(13) No longer the Poster Boy

Poster ChildOn Tuesday the 11th I had a blood sample taken. Yesterday (Wed.), prior to chemo #3, I answered all of Dr. Shipp’s questions before she reviewed my blood results with me.  She said, “You’re STILL the poster child of dose dense M-VAC chemo.” WooHoo! It was a subtle change, but I noticed it: she promoted me from Poster Boy to Poster Child!

All of my important numbers are where they need to be. Dr. Shipp explained that if they were not, they would have to supplement with blood transfusions.   I’m on track for the 4th and final dose on the 26th.

I still have about 50% of my hair – enough so that I look my age. Based on what happened last time, I should lose a bunch more this coming week. Eileen and I are taking weekly photos of the “stages” to share once the process is complete.

Photo: If Dr. Shipp is serious, I thought I’d find a good childhood photo of me so that she can get busy on that poster. I always felt bad having training wheels, but seeing the photo, the bike looks way too big for me.

(12) July Highlights

IMG_0916 0201Thank you all for your unending positive thoughts and prayers.  A few weeks ago, my cousins took part in a Relay for Life.  They made luminaries with my photo (of the superman kind) and set them up along a 5K walk at night. Thank you Larry, Lynn, Cheryl, Craig, Christine and Rosemary. Earlier in July, Eileen’s sisters Kathy, Pat and Ann, our brothers-in-law Tony, Albert, Neil, and Tim, plus our nieces Lauren and Heather with Simone, and our nephew Rusty with Ana, Eileen and Aidan, all came out to our place to create a “no stress” party.  They brought everything… we only needed to bring the nice weather.  Thank you.

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(11) A Star Is Born!

Poster BoyI had the second round of chemo today.  It started at 10:30 and ended at 2:30.  Prior to beginning, Eileen and I visited with Dr. Shipp to talk about the results of yesterday’s blood test, and discuss how I am doing.  Dr. Shipp said, “You are the poster boy for handling Dense Dose M-Vac Chemotherapy.”

That is amazing!  Mostly because Dr. Shipp is younger than me and she called me a boy! (It’s also good news that I am handling it all so well.)

Of course I am fully aware that chemo can change at any moment and a week from today I might be the poster boy for bald men projectile vomiting.  If that should happen, I will embrace the experience and we will take another photo.  But I don’t think Eileen will be standing in front of me.

(10) Amazing Science!

IMG_0849The thing that is amazing to me is medical science…

When I went for my consultation with the oncologist on Wednesday (22nd), I didn’t know what to expect.  I was prepared for the worst case: my white blood cells might be too low and my body might not be reacting well to the chemo.

In fact, the opposite was true.  My blood pressure was perfect and my blood levels were BETTER than pre-chemo measurements. These results mean the Neulasta shot I received the day after chemo gave my body the boost it needed. I’m good to go for round two of chemo on the 29th.

Somewhere out there is a scientist who spent long hours figuring out how to make an injected liquid that would create white blood cells. Thank you.

The photo shows some less dramatic amazing science: We now have a generator.  No more missed Super Bowl games because the power is out (plus we can keep warm)!

 

(9) Just A Quick Update

IMG_6090I left work early yesterday (Thursday) to go to Rockford for a shot of Neulasta.  Here’s why…

Cancer is a fast growing cell and chemotherapy targets fast growing cells. Other fast growing cells are hair (bye!) and white blood cells (ouch!).  The main reason I am able to get 12 weeks of chemo in 8 weeks is because of Neulasta.  It builds my cell count quickly.  Without it, it would take those extra weeks to build back up.

I will get a blood test on Tuesday the 21st, and on Tuesday the 28th. If the white blood cells are where they should be, I’ll get my next chemo on the 29th.

(Photo: Eileen and I went to the movies this past weekend with our niece, Lauren. You can figure out who is who.)

(8) Danger Will Robinson, Danger

IMG_0986When he wasn’t looking, I snapped a photo. This robot spent 4 hours today doing everything it could to rescue me from the dangers of cancer. It dripped, pushed and pumped.  It beeped.  And when I had to go the the bathroom, it followed me in and stood patiently at my side (and didn’t peak).

To reinforce its efforts, the robot beep-beeped for help.  And the very best answered the call: Cheryl, Cindy, Brittany, Val, Trista. Together they formed a great team. My time zipped by.  Everything went well.  No problems while I was with them, and no problems since I’ve been home.

Eileen was there with me.  We had a consultation with Dr. Shipp prior to the treatment.  We believe we are prepared for just about anything for the next several days.

Eileen and I were home by 4 pm today.  We worked outside for a few hours (she weeding and me mowing the pasture) then had dinner.  It was a normal evening.  And that is the best news I can report.

(7) See Me For A Free Haircut

IMG_0984Today (Tuesday) my port was used for the first time.  (It’ll be standard procedure for the oncologist to take a blood sample the day before I get chemo.) I was a tad anxious – I anticipated that a needle in the chest would sting more than in the arm.  But I was wrong. Painless. Now I’m less concerned about how things will feel tomorrow. Having a port is a good thing.

As I was leaving the oncologist’s office, the receptionist asked to me to wait so they could give me a present. They then handed me the haircut kit shown in the photo. At first I didn’t understand and I stared at them a moment – then it clicked and I laughed.

They explained that Wahl Clipper is in Sterling, just down the road from Dixon where I’m having the chemo.  A previous chemo recipient who worked at Wahl Clipper wanted to do something nice and gave them several of the haircutting kits.

Thank you all for the many kind thoughts you’re sending my way. I’m anticipating all will go well tomorrow.

 

(6) My Port Is In Place

IMG_0949My left-side port features a bright sun, a fun red boat, and gentle waves lapping against a sturdy wood pier. (Thank you, Eileen.)

My right-side port is Barney purple, under my skin, and what I had “installed” yesterday. (I asked if they come in colors other than purple. They don’t.)

Up until a few weeks ago, I didn’t know what an injection port was.  I imagined it as a tube with a plug in the end – when I needed to get a shot or something, they’d unplug it.  It is in fact a container “device” that is inserted under the skin that taps in to my jugular vein.  The device serves as an easy-to-find target for needles. The direct line to my jugular vein assures rapid intake of whatever is being administered.

When Eileen and I went to Swedish American Hospital in Rockford yesterday, I was concerned about the procedure, not knowing what to expect.  The 2nd floor cath lab team that worked on me was wonderful. Everything went smoothly and pain free. I’m looking forward to the post-op survey so I can give them a lot of positive feedback.

I am now chemo ready.  I am actually looking forward to the 15th when all of those drugs will have the opportunity to do their thing.  And while the drugs are going into my right-side port, I’ll be fantasizing about going out to that left-side port.

(5) A Change In Plans

A-Change-In-Plans-194x300Eileen and I went to the cancer center today (July 6th) and had a class about what to expect with the chemotherapy.  While we were there having class, two things brought about a change of plans in my chemotherapy schedule.

One is that (based on the bruising on my arms from needles over the past 10 days) my veins are not an easy target, and sometimes they gush like a garden hose but then quickly lose pressure, forcing the nurse to pierce again in another spot.  (This has always happened to me over the years and is not a reflection on the skills of the nurse.) The nurses and I decided that having the first series of chemo directly into a vein, and not into a port, would not be pleasant. (I had already been scheduled to have the port put in on Wednesday.)

Second, I had not had a MUGA test.  A MUGA test is the process of taking some blood out of my arm, mixing it with radioactive “stuff” and then injecting it back into my arm. Four 6-minute videos are taken to track the radioactivity through my heart. A MUGA test is mandatory before starting chemo to have a benchmark of heart performance.

All leading to today’s change in plans.  Instead of starting the chemo, Eileen and I left the cancer center and went to the hospital where I had my MUGA.  Now my first chemo session will be Wednesday, July 15th. This will give my port a week to heal before it is used. Also, rather than take the 4 chemo drugs (MVAC) over two days, we decided to do them all in one day. This does not impact the side effects (like make them worse) – it is strictly a more convenient method. It only means a longer day. So on the 15th I will have many, many hours to blog and tell you all about what I’m feeling (Eileen will be with me to edit).

The book illustrating this post is A Change In Plans by Paul Cook.  I recently received a note from his widow Susan Knutsen-Cook reminding me that without Paul here, it’s a sure thing that I’m missing out on all kinds of bladder cancer jokes. It’s true – and there’s no doubt they’d be funny. He always made me laugh. I and everyone in the St. Charles Writers Group truly miss him. (Click on the book cover to learn more about Paul.)

(4) My Chemo Spices

IMG_0909I think oncologists are like chefs because with every patient they need to figure out which recipe to use.  And in my case the analogy is true because my oncologist is “preparing” me for surgery.

My first chemotherapy treatment will be July 6th.  I am having “dd M-VAC.”  DD means dense dose. Normally, M-VAC consists of 4 treatments spread out over 12 weeks.  With Dense Dose, the 4 treatments are given over 8 weeks.  The DD is more effective.  It is given to patients who they believe are physically capable of handling it. (Eileen believes that they classified me that way because I wore new jeans and a new shirt to the consultation – I believe it is because I like to chop wood.)

On July 6th, I will receive the “M” part of the treatment.  It should take less than 2 hours.  On the 7th, I will receive the “VAC” part. It will take more than 4 hours. On the 8th I get a shot to boost my white blood cell count (takes a few minutes). Eileen and I are attending a class on the 6th before the first treatment to learn what to expect and how to deal with whatever happens. Bon Appétit!